As hard as it would be to let her go, we will get to see her again for eternity in heaven!”. They took her to the NICU to put them in. Your Lightboxes will appear here when you have created some. The muscle tone will be very weak leading to hypotonia.The baby may have extra finger in hands and foot. The nurse removed the IV from Abigail; she had a large splint on the arm and her hand was covered up. I felt like it was a constant reminder to me and everyone else who knew that my baby was going to die. It seemed to take quite awhile, so Steve went to see why. After it was removed, Abigail almost immediately rubbed her hands together like she was so glad to have both hands free again! It kept coming back out of her mouth or her nose. But over time, it became natural and they started thinking of her as baby Abigail who they loved, not as baby Abigail who has Trisomy 18. That night, they stayed up until after midnight, holding her, afraid to go to sleep since she started having frequent apnea episodes. Will we bring her home?” Thinking about the possibilities and trying to prepare was overwhelming and exhausting. Unfortunately, they didn’t have that luxury, so it had to done on the fly.

Copyright complaints  ~   We did not decide that, God did. It is also the most severe. This was important for them to hear, because it helped them understand that fixing some of their baby’s problems would not be helpful to her because the Trisomy 18 and its associated complications would not be fixable. I mentioned in my last post that my dear friend, my camera!, had broken. Trisomy 18 is the second most common type of trisomy syndrome, after trisomy 21 (Down syndrome). Other features include a small head, small jaw, clenched fists with overlapping fingers, and severe intellectual disability. Trisomy 18 is the most common abnormality involving chromosome 18. 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It was hard waiting for the results, even though they really felt everything would be fine. We held a dedication ceremony for the playground, which was another step in my healing. Mindy recalls, “I was pretty strong about it overall, but I did start crying a couple of times.”. Steve had brought a copy of the birth plan, which they quickly copied and distributed and everyone did an amazing job of communicating things in a short time. Download premium images you can't get anywhere else. So for Thursday and Friday, things were very calm in the room, and they focused all their attention on holding, loving, and caring for Abigail. Terms and conditions  ~  

Genetic abnormalities can be found even during first/second trimester of pregnancy. He said the baby had an extra chromosome in the 18th position.